this could happen to anyone, but it happened to beth

This is a community member. This could be anyone, and it’s legitimate. This is NOT someone who is faking anything and with all she has faced so bravely I don’t know how she does it.

She’s a real woman and a mom and she can’t catch a break.

Brain tumors, other potential cancer-like growths, and Mitochondrial Disease. (Mitochondrial Disease examples are MS, Parkinsons, and Lou Gehrigs Disease (ALS).)

But for the Grace of God Go any of us. If you can help, every little bit helps. Even just sharing this helps.

Please help me pay this forward. This is a generous community and Beth needs our help.

Thank you

From her Go Fund Me months ago:

*updated*  Beth has always worked two jobs – however – in early December 2018 one of the attorneys at the lawfirm she worked at told her “if you’re having seizures I can’t have you here”… two weeks later she was let go – the Friday before Christmas.  She was not told why.  She was told only that she had 5 minutes to gather her things and leave and and never come back.   She rarely ever took a sick day even with the diagnosis of a brain tumor and lesion, which causes her to have severe vertigo and balance issues, seizures, headaches and fatigue…. 

In 2012 she even donated one of her kidneys to someone who needed it!  To hear her say it, “it was the right thing to do.  And, I had an extra one anyway.”   She’s always one to make people laugh…..She has been battling migraines since age six and was diagnosed with epilepsy a few years ago.  Now she is facing a recent diagnosis of a CORTICAL DYSPLASIA LESION and a LOW GRADE GLIOMA (brain tumor).  Which was actually discovered in 2014 on an MRI taken when she had a stroke.  However it was not disclosed to her until  June 2018 when she began having serious issues.  Someone dropped the ball big time!

Help Beth McNulty Battle Mitochondrial Disease

From her Go Fund Me this August:

AUGUST UPDATE – Beth’s is now being treated by a Neurologist at Einstein for Mitochondrial Disease. Mitochondrial Disease examples are MS, Parkinsons, and Lou Gehrigs Disease (ALS). She has an illness you cannot see and if she had been treated correctly years ago may have been able to avoid this stage. THERE IS NO CURE. THERE IS NO MAGIC MEDICATION. Mito is controlled through diet and nutrition and overall management. The hardest part for her and for us is the effects of the cognitive decline. She can’t do many of the things she used to even just around the house and its devastating to see and devastating to her.

At this point she has been using a cane to walk since November. She has dementia like symptoms more often but she still has more of a “good day” than not so that is what we hang onto. The right side of her body is weak and her hand tremors which is also starting to happen in her right leg. She cannot hold a cup, and her right hand remains closed and is painful to open so we bought a small toy football for her to hold to keep it open.

She is incredibly effected by sound – too many “noise sources” are very confusing for her and can be overwhelming and even physically painful – she says it makes her ears burn – which also triggers seizures (before a seizure she usually touches her ears and face and that’s how I know she’s about to have an issue). She also gets very confused at these tmes and often has trouble finding her words or remember the conversation she is in. I think this may be part of why she stays in alot.

Her body cannot produce the energy it needs as fast as it is being used. Some days she cannot even move to reach for something because her body just wont cooperate and she is exhausted but when she CAN do something even if it is for a short time she does.

She cannot eat many solid foods at this point because she cannot digest them well (Gastroparesis) and chewing physically makes her Jaw tired.

We focus on key nutrients like Magnesium, Vitamin D, Iodine and B to keep her energy levels up. Her medications are on a schedule – Thyroid, Seizure, Migraine, and the foods we make sure she has every day are Avocado, Mango, Banana, Chicken and FlaxSeed.

In June she had and EEG and ENG, in July she had another w/wo contrast so her Nuero can compare with all the other scans dating back to 2014 when they discovered the tumor and lesion (but forgot to tell her about) but ALSO discover her Gastroparesis, and Thyroid Disease – 3 effected Organ systems = Mitochondrial Disease) – but 5 years later here we are…

The ENG was a very painful test of electrical conduction done in two parts – the first was topical electrode shocking her muscles and the second was long needles that shocked her muscles once they were inserted – I had to leave the room – it was like watching her be tortured for two hours.

This disease is robbing her and us. It’s painful for her to have and painful for us to watch her go through knowing nothing can be done. Alot of people seem to be google doctors which is very frustrating – we know what we are dealing with because WE are dealing with it although we do appreciate the well intended suggestions of trying this or that or maybe its “just…” we finally have a have a very educated team of medical professionals that are experts in their field.

Beth thought she had unemployment funds until December and in May was tricked into signing a release not to sue her former employer for an ADA claim in exchange for them not to contest it. and her last payment was in June. She has applied for disability but in the meantime we could really use some healp.

Help spread the word!

have you met mike noone?

Have you met Mike Noone? I did this afternoon at my friend’s cookout, and to be honest, I was impressed.

No, I am not telling you how to vote. Mike is the first candidate I have met this season, and the first I have met in a long time that you can just connect with and have an actual conversation. There is no political puffery, and I appreciate that.

Mike Noone is the Republican candidate for District Attorney in Chester County. He is at present, District Attorney Tom Hogan’s First District Attorney.

I will note I am always open within reason to meeting candidates. If I think they are a waste of time, I won’t and I am not shy in saying so.

But I liked meeting Mike. He is definitely worth having a conversation with if you have the opportunity! He also has an impressive track record.

cool summer pop-up you DO NOT want to miss this sunday, august 11 in glenmoore!

Looks inviting doesn’t it? That is because it is!!!

So what are you doing tomorrow Sunday, August 11 between 12 noon and 6 PM?

You should be going to Glenmoore PA. Just put 1941 Creek Road Glenmoore PA into your GPS or maps program and go! Trust me, it’s a beautiful drive into the country and you will be glad you did! I sure am!

Today I had my BEST score in a long time! Cool vintage dairy sign from the Vintage & Vine Preview POP-up at Glenmoore Deli (1941 Creek Rd Glenmoore PA)

This new venture being introduced to us by two of my pals Kristin Smith and Christie Keith is something you don’t want to miss!

Seriously? Go tomorrow! If you’re going to church you can go after church. It’s a nice weekend and here is the menu:

This burger was fresh and AMAZING!

Salad with fresh mozzarella and a balsamic glaze.

Sun Tea with fresh herbs and flowers!

Old-fashioned fair lemon 💗

All of the food is locally sourced when possible (obviously we don’t have any citrus groves in Chester County) and is super fresh! Amazing produce and some was for sale in the store as well.

iThe eclectic mix of vintage, antique and more modern treasures was so much fun! Including to my surprise a fabulous jewelry line out of Washington DC created by a woman born and raise in Chester County! Yes, Diament Jewelry by Libby Diament.

Libby has a store in Washington, DC and started making her jewelry while living and working in NYC. Libby travels around the country hunting for vintage parts and jewelry that can be brought back to life. It’s sort of like finding treasure!

Diament Jewelry has been worn by celebrities including: Jennifer Love Hewitt, Elle Fanning, Cher Lloyd, Rachel Bilson, Giada de Laurentiis, and Meredith Vieira.

Bar earrings from Diament Jewelry

I had been looking for a pair of bar earrings for a couple of years. But I didn’t want ones that look like everyone else’s. So I was super psyched to discover the ladies had Diament Jewelry in their pop-up today. I also bought a pair of small studs that look like glittery slices of quartz or fools gold. As I get older I like wearing study earrings more than I have in a long time and there’s a nice variety for sale along with some adorable dangle earrings like a pair of wishbones! There are also in a locked case some of Diament’s lovely ethereal necklaces.

To check out more on Diament Jewelry visit their website or better yet read the article Forbes Magazine wrote about Libby Diament!

You will also find lovely local raw honey by Hound Dog Honey and soaps and lip balm by Vellum Soap Company and unless they sell out these to die for soft caramel candies by Dave’s Delectable Delites of Glenmoore.

But have I raved enough about the menu? So good. So fresh. Christie Keith is a genius in the kitchen! That is the best part about this menu everything is fresh nothing is frozen. It makes all the difference in the world in taste.

I love to cook as everyone knows, and Christie Keith is one of those people that I will have cook for me any day!

Take a drive in the country tomorrow. Have lunch, find a treasure!

civilian bravery followed by questions in the wake of yesterday’s fire on pottstown pike.

Ginny Kerslake photo.

This morning the Daily Local has an article about a vicious fire that could have been deadly yesterday along Pottstown Pike/ Route 100.

Daily Local: Firefighters battle apartment fire in Uwchlan

By Pete Bannan Pbannan@21st-Centurymedia.com 7 hrs ago Comments

UWCHLAN — Fire erupted at an apartment house in the 500 block of N. Pottstown Pike Wednesday.  

Lionville Fire Company was dispatched just before 3 p.m. for the report of a possible subject trapped in the former two-floor motel annex.

Firefighters reported heavy fire on the second floor of the building….The cause of the fire is under investigation

I think at least FIVE fire companies responded. And given HOW busy 100 is, many, many kudos to the first responders because that is difficult location no matter how you slice it. I am also told access to this property is somewhat dicey? I wonder if they could even get fire trucks across the little driveway bridge off Route 100 that I am told crosses a creek there? People say it’s not great?

The reporter/photographer for The Daily Local is someone I have known for years. He covers a lot of fires and one time he covered a house fire next door to where I lived many years ago. I will never forget that fire because the firefighters had to work so hard to keep the flames engulfing an old Victorian house owned by an absentee landlord from jumping to the roofs next door, including my own.

What the reporter/photographer doesn’t mention is a selfless local Chester County resident who stopped to help BEFORE first responders arrived on scene.

And I am NOT saying this as a chide, I am not sure anyone knew. But I know so I am going to tell you.

The person who stopped and risked her own safety was my friend, Ginny Kerslake. Yes, the same Ginny Kerslake who ran for Chester County Commissioner in the recent Democratic primary this past spring that the Chester County Democrats chose NOT to endorse. (And yes THAT is most decidedly a dig at the flawed endorsement process of a major political party.)

This is what my friend Ginny shared with us yesterday shortly after the fire erupted:

Avoid route 100 just north of Township Line Rd.

As I was driving past I saw black smoke and then the flames. Called 911 and banged on the apartment doors right next to the house to alert residents. A woman used my phone to call the woman who lives in the house – luckily she was out somewhere but her husband who smokes may be inside where the fire is. I really hope he’s not. First responders on scene. It’s frightening to see.

I left once there was nothing for me to do but get out of the way. I’m home now hearing lots of sirens and hoping for the best for everyone there.

Ginny acted in a selfless and heroic manner in my opinion. She put herself in danger to try to help others before first responders arrived.

Ginny is a modest woman and doesn’t seek accolades or personal glory for the amazing things she does. However, yesterday what she did was brave and heroic and she deserves our praise and thanks. In a world where so much is ugly, I am honored to have a friend who truly will put her own needs and life aside for the greater good. Ginny exhibited a selfless act of bravery in the true spirit of community.

I don’t think Uwchlan Township even realized what she did.

That above was the Uwchlan Township Police Department press release post incident. They obviously did not realize that Ginny Kerslake was in part responsible for getting people out of the structure(s).

I remember yesterday when PulsePoint reported the incident. They said “commercial structure” so I was not sure where they meant.

You undoubtedly have driven past this now fire location before if you are traveling Route 100.

The above photo with the arrows is one I shared in the fall of 2017 when a billboard was being proposed for the derelict and boarded up farm market or whatever it is next door. I used the arrows to remind people of not only the location on Pottstwon Pike/100 but also the proximity to the location which had the fire yesterday.

And this location is what was once known as the Dogwood Motel. Now it appears to be apartments of some sort. And this location once again represents the very limited supply of “affordable housing” in this part of Chester County. Like the mobile home parks we see scattered about including in townships in close proximity like East Whiteland and further away near or in other municipalities like Wallace Township, Honeybrook, Phoenixville, and the Downingtown areas, the old Dogwood Motel represents a very limited supply of affordable housing.

And as Chester County continues to get bombarded with new developments, the affordable housing supply continues to dwindle. And we are not simply referring to section 8 housing, we are referring to low income housing for those of modest means in all categories including our elderly who live on fixed incomes in a lot of cases. With all of this new development, taxes and rents increase often pricing life-long residents quite literally out of their homes.

No, I am not being a drama queen, it’s true. And people of low incomes and modest means are the invisible people society doesn’t wish to see.

This location at 514 N. Pottstown Pike is run down and has been for years. A search through Chester County records indicates the property is owned by people who seem as if they lived locally at one time, but now reside in Florida. I am not positive but if I am reading old deeds correctly they bought it possibly in a Sheriff’s sale decades ago? Here is are screen shots from Chesco Views:

The Daily Local indicates there is some sort of investigation post-fire. That is normal. Of course other questions would now include if the property owners are the equivalent of absentee landlords who is responsible for day to day maintenance on this property? And who at a township level and county level is responsible for seeing that this structure and other low income rental properties are safe and up to code?

It is thanks to first responders and ordinary people like Ginny Kerslake who is not a first responder that no lives were lost.

But what happens now to all of the residents who call this location home? I can’t answer that question but myself and many others are wondering.

If anyone does any LEGITIMATE fundraisers for the residents here, please post a comment on this blog’s Facebook page.

But for the grace of God go any of us in a situation like this.

Ginny Kerslake photo.

happy 25th anniversary to the west chester growers market!!!

IMG_6363I missed all the political fanfare early this morning, but I did make it to the 25th anniversary of the West Chester Growers Market.

State Senator Andy Dinniman and Chester County Commissioners Michele Kichline and Terrence Farrell were there at the opening of today’s market to celebrate with everyone and present citations and proclamations.

But where oh where were the officials of West Chester Borough? Borough Council? I mean it is NO SECRET they have been discussing the lot on the corner of Chestnut and Church Streets again right?  And what developer and hotel owner want in on whatever is discussed, hmmm?  Oh the irony that they just discussed this again, what? This past week?

wcb

And no one from the Borough could come to the West Chester Growers Market in an official capacity to celebrate their 25th anniversary? The County and State felt they should be there, so why not the Borough?

Image may contain: one or more people, people standing and outdoor

Photo courtesy of County Commissioner Terrence Farrell’s Facebook Page.  He and Chester County Commissioner Michelle Kichline presenting a County citation to Paul “Bud” Hauser, an inspiration behind and one of the four original growers who founded the West Chester Growers Market 25 years ago. I think this is fabulous that they did this!!

Oh and my opinions are my own, by the way.  And sadly I think West Chester Borough needs to appreciate the organizations which bring people into the Borough weekly for 25 years, don’t you? The West Chester Growers Market brings people and farms and small food producers together. In a world filled with ugliness, this is something genuine and nice.

Today the market was bustling in spite of the crazy heat.  And the vendors were nice enough to have lots and lots of water on hand for customers. And ice cream!!  And balloons and face painting for kids!

IMG_6377

I love the West Chester Growers Market and it is pretty much the only one I patronize at this point since East Goshen seems to have given up on their farmers market which I think is a huge mistake since they have one of the most awesome locations.

The photos I took today were my own.  I am not compensated in any way for posting about the market. I post about the West Chester Growers Market because I love it and think it’s fabulous.

And if West Chester Borough Council gets their knickers in a twist because I do not feel in my opinion that they appreciate the market in all it’s fabulousness, tough noogies and am I wrong?

HAPPY 25TH ANNIVERSARY WEST CHESTER GROWERS MARKET!! 

WE LOVE YOU IN CHESTER COUNTY!!

 

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can you help identify this chester county bridge

UPDATE: thanks to my awesome readers we have an ID on the bridge! It is the Knox Covered Bridge in Valley Forge Park!

FROM EARLIER:

A lady I know needs our help. Her beloved aunt painted this little painting in the 1950s. She would like to identify the bridge. I know I have seen this bridge but cant remember where.

Please comment if you know the name and location. Thanks!

LOL I actually took this photo!

Photo from a few years ago.

when good conquers evil eminent domain you get lavender fields

Long ago is what feels to be now another lifetime, I was part of the original Save Ardmore Coalition. We were ordinary people who banded together to save friends’ and neighbors’ businesses from eminent domain for private gain in Ardmore PA.

Along our journey the wonderful people at the Institute for Justice helped us and taught us and encouraged us. Through IJ we also met some amazing and inspirational people.  (and if your community is facing eminent domain check out the Castle Coalition part of the IJ website.)

Here straight from IJ (Institute for Justice’s website success stories):

Pennsylvania
Ardmore
Through the grassroots and political processes, a citizens group called the Save Ardmore Coalition (SAC) successfully defeated Lower Merion Township’s attempt to seize and bulldoze 10 thriving businesses in Ardmore’s charming historic district. When it comes to grassroots activism, the SAC did it all — rallies, protests, publicity campaigns and coordinated efforts to unseat local officials who supported eminent domain abuse. Its members testified before state and local bodies urging the reform of eminent domain laws, attended the Castle Coalition’s national and regional conferences, and worked with the media to bring attention to their battle. In March 2006, the Township took its condemnation threats off the table — no doubt in response to the public outcry generated by the SAC.

Valley Township
It cost Nancy and Dick Saha $300,000 of their retirement savings and six hard years, but they prevailed in their bout with the City of Coatesville. The couple bought their Pennsylvania farmhouse in 1971, making lifelong dreams of owning a small horse farm a reality. With their five children, the Sahas moved to Chester County and restored their charming 250-year-old residence. Truly a family farm, two of their daughters married and built their family homes on the land, giving Nancy and Dick the chance to see their five grandchildren grow up next door.

When Coatesville threatened to take their property by eminent domain to build a golf course—plans for which didn’t even include their farm in the first place—the Sahas remained fully committed to a grassroots battle. They submitted three petitions, protested at local meetings and took their fight to court. Ultimately, the city council backed off when the Sahas pushed to elect new representatives, agreeing to purchase five acres that the Sahas had offered to give the government for free at the beginning of the dispute.

It was a crazy time. What we all went through was hard. It was a brutal battle.  We went to Washington alongside the Sahas, Susett Kelo (think Little Pink House), people from Long Branch NJ, and many many more.  It was the time of the US Supreme Court case Kelo vs. New London.

Dick and Nancy Saha were inspirational.  They created a hand off my farm movement. (You can read about it here on the Institute for Justice website in more detail.) They had a great deal of local, regional, and national news attention.  We all did. It was kind of crazy.

It cost the Sahas hundreds of thousands of dollars and pure grit and hard work and they saved their farm.

I used to love seeing Dick and Nancy Saha.  They are the nicest people and they would make the drive from the Wagontown area to even visit us in Ardmore when we were hosting events.

But time and life move on and we all got on with our lives after eminent domain.  I moved to Chester County.  And since I moved to Chester County  I have thought about the Sahas once in a while.  I thought about reaching out, but then I thought well the battle was over so maybe it would seem weird.  But I always wondered what happened to the Saha family after.

So this morning an article from Main Line Today popped up in a social media feed. About two sisters named Joanne Voelcker and wait for it….Amy Saha! Dick and Nancy Saha’s daughters and their lavender farm! (Lavender farm? Wait what?? How awesome!!)

Two Sisters Transformed Their Family’s Chester County Farm Into a 42-Acre Lavender Oasis
Amy Saha and Joanne Voelcker, the owners of Wagontown’s Mt Airy Lavender, have dedicated themselves to growing and harvesting seven different varieties of the plant.
BY LISA DUKART

In the heart of Chester County, there’s a little piece of Provençe, France, thanks to sisters Amy Saha and Joanne Voelcker. On their 42-acre Wagontown farm, some 1,200 lavender plants flourish. In the warm months, those fields are abuzz with bees and butterflies. They flit from plant to plant, drunk on the heady scent the flowers release as they sway in the breeze.

Creating and maintaining such an idyll has been no small feat. Saha and Voelcker’s Mt Airy Lavender has required years of dedication and hard work. Their parents bought the farm in 1971, moving their family from Media to the homestead just outside Coatesville. With love and care, its rundown 48 acres began to thrive.

Years later, in 1991, the city of Coatesville tried to build on the property, claiming eminent domain. After a six-year legal battle, the family won, losing just six acres in the process. As their parents aged, preserving the land they fought so hard to protect became more and more important to the sisters. They couldn’t bear to see it sold.

Over the years, Saha and Voelcker built their own homes on the farm to be near their parents. The houses sit on either side of a long, shaded driveway that wends by pastures where horses can be seen cropping the grass. One lavender field is right behind Voelcker’s home. She began planting it in 2012, a year after she and her husband returned from a five-year stay in Brussels. “I worked and lived over there,” says Voelcker, the former head of client insight and marketing technology at Vanguard. “I got a chance to visit the South of France, and I just fell in love with the lavender.”

Please take the time to read the entire article. It’s so wonderful. I am so happy for the Sahas and this new success I am am all choked up with emotion.  It is so awesome to hear about nice things happening to nice people in a world that some days is truly nuts.

I can’t wait to visit the farm on open farm days.  Via their Facebook page for Mt. Airy Lavender I found their website.

They have great products they make that you can order online and they hose all sorts of events .

Events that interest me are the upcoming open farm days and I hope my husband will want to check it out:

Visit us when the lavender is expected to be in bloom – Mt Airy Lavender Open Houses – Sat. June 22, Sun. June 23, Sat. June 29, Sun. June 30
Come visit Mt Airy Lavender these weekends when we expect the lavender to be in bloom. Shop our products, bring your cameras and a picnic lunch. Fresh cut lavender and a variety of lavender products will be available for purchase. We aren’t normally open to the public, so this is a great opportunity to enjoy the farm. Please note – we lost quite a bit of lavender due to all the rain and lack of sun. We are in the process of replanting. The farm is still quite beautiful so we hope to see you at our Open Houses.

We will be open 11 am to 4pm on:

Saturday, June 22 & Sunday, June 23

Saturday, June 29 & Sunday, June 30

Note: Bees love lavender, please be aware that bees will be attending the Open House as well. If you are allergic to them, please take special precautions!

Click here for directions to their slice of heaven.

What else makes me happy? Not just that this is still a farm and was saved, but how farmers in Chester County get creative to exist in today’s world.  See? We don’t need fields of plastic mushroom houses, we can have things like fields of lavender instead!

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Another view of the Saha Farm today courtesy of Mt. Airy Lavender