collecting christmas

Everyone who knows me knows how much I love Christmas! Today I went to an estate sale in the rain and found these two lovely little Christmas books in a pile of other things.

These are sweet little books that will sit on a table at Christmas with other Christmas books. They aren’t super valuable, they’re just a nice little addition to my Christmas books.

In 66 days it will be Christmas 🎄

Ho Ho Ho and thanks for stopping by.

respect for old glory?

I remember when I was young flags would not be flown in inclement weather like today in the rain.

Flags would be lowered at dusk and they would be flown again at dawn.

I get that most flags today are made of nylon or weatherproof material, but what I don’t get is Old Glory respected the same?

This photo represents but one flag I saw today when my husband and I were driving around. I saw lots of flags flying in the rain. And I think even if flags are made of more all weather material these days the respect for the flag should still mean something.

I guess it’s just one of those things I’ve noticed where it used to be once in a while in bad weather you would still see a flag flying. Today if it’s bad weather? They’re all still flying for the most part.

I guess I simply feel that our flag is a symbol of our country and what it means to be American. The flag is a symbol worth respecting and revering, so I guess I’m asking if people are going to fly the flag can’t you bring it in when you know it’s going to rain? Can’t you bring it in at dusk?

I presume that like many other things in this world, flag etiquette has changed. I think that’s kind of sad.

Stay safe and dry today.

residents, it is time to saddle up to save berwyn and save easttown – important meeting tonight at hilltop house !

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Handel’s Ice Cream. Photo found on Google Photo Search

ZONING MEETING EASTTOWN TUESDAY SEPTEMBER 17 7:15 PM AT HILLTOP HOUSE 570 BEAUMONT RD DEVON

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Turn out to #SaveBerwyn

This first pegged below was sent to me re: Easttown and the proposed hideous plan for Handel’s Ice Cream and some of the BUSINESSES seem to be AGAINST the residents?

This was part of something sent out by a guy in the Berwyn Devon Business Association – I am told they used to head the group but now Stacey from Eadeh below does ?

berwyn

The email says (and I quote):

Just a reminder that tomorrow night Sept 17 at 7pm will be the zoning meeting to hear public comment regarding the Berwyn Square/Handels development. We need the business community to come out to support this project which could be the game changer for Berwyn like East Side Flats for Malvern. The neighbors who are against it have rallied a petition and seem to project fear based on change and not looking at this as an opportunity for growth and vibrancy in our community and getting rid of an eyesore at the entrance to the Village. If you can’t make it please text me or email Stacey Ballard at staceyballard@eadeh.com with your comments and support. Again we need to balance the negative but not majority voice. Thank you!!!

So the author is a Realtor aren’t they? And I have to ask how much Eadeh Enterprises would profit if this project goes up? Wouldn’t it benefit their property values?

Also note the post card that went out to the business community about the project (and a meeting last week) and do you see the rendering? The people who are running this business association don’t seem to respect the residents they want as customers do they?

Look, the thing about businesses is that a lot of those people do NOT live RIGHT there where this is being proposed 24 hours a day /7 days a week / 365 days a year. Not all business owners anywhere and everywhere are also residents of municipalities going through development angst. That is WHY they often do NOT get WHY residents are upset.

In this case in Easttown I don’t get WHY developers don’t get why residents are upset, especially because some of them live in Easttown, so how could they propose something so out of character, right?

And oh yeah, have you all looked closely at Eastside Flats that the business association seeks to make a comparable on? Facade is the only thing with something to it and 3 sides of the building are NOTHING  as in they look like a cheap motel at the beach on 3 sides and will the facade finishes withstand the test of time? And as for safety, can a fire truck actually get BEHIND Eastside Flats? Or would they have to go up on the train tracks? And have you ever stood in the little neighborhood on the other side of the train tracks to see what those people see? A big hulking building shadow hanging over them?  And the sidewalk don’t even properly go to the edge of the driveway/parking lot at Eastside Flats. You have to step up and go over mulch so isn’t that a problem for the handicapped and elderly? (And why has Malvern Borough had them fix that?)

I took this photo when the flats were being built

We all patronize the businesses at Eastside Flats because we love them, but stand inside some of them if something gets flushed upstairs and tell me what you hear ? IMHO inside this one store you hear everything. And that was with music playing in the store.

East Side Flats still does not fit or complement Malvern Borough from a design aesthetic and never will. I don’t think that is right. And to say that building getting built created a renaissance is a fallacy because that project was built because Malvern was already on an upswing. Another opinion I am entitled to.

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I also took this photo a few years ago.  Please note that is scored concrete, not real brick. And when it is wet, that is STILL more slippery than real brick in my humble opinion. These buildings are still out of character with the size and scale of other buildings in Malvern.  People might be getting used to them, but it still doesn’t make it right.  Human scale and setbacks matter.

The things about East Side Flats getting built that businesses and Easttown aren’t mentioning include the piss poor low ratables – $60,000 was ALL that Malvern Borough got wasn’t it?

$60,000: East King Revitalization’s Impact on the Borough
The new apartments and businesses won’t be a windfall for the borough.
By Pete Kennedy, Patch Staff
Jun 27, 2012 8:34 pm ET | Updated Jun 29, 2012 3:38 am ET

During a discussion of the police services and budgeting at the of Malvern Borough Council, resident Joan Yeager asked a related question:

“Once the King Street project is completed, how much additional money is going to come into the borough? In taxes and all,” she said.

“Something in the neighborhood of $60,000 a year,” council president Woody Van Sciver said, citing a financial feasibility study done before the project was approved.

“That’s it?” Yeager replied, expecting a bigger payoff from the several new businesses and hundreds of new residents that will be moving to the east end of the borough.

“It was staggering, how small it was,” Mayor Jerry McGlone said

So remember the fairy tales spun on pots of Township gold from ratables are NOT necessarily true are they?

Oh and the thing that Easttown and the pro-development faction DO NOT tell you about is the fact that after East Side Flats went up it was a HUGE catalyst for change because that next election the mayor and I think half of borough Council were removed on a massive stealth write in ballot campaign weren’t they?

Meet Malvern’s new councilmen, mayor
By Linda Stein
lstein@mainlinemedianews.com Nov 12, 2013

In an example of democracy in action the voters in Malvern turned out in record numbers in the Nov. 5 to sweep out the incumbent mayor and three councilmen.

The pace and character of development in the borough was evidently the issue that brought voters to the polls, resulting in the successful write-in candidacy of three residents for seats on the council…David Burton, a Democrat who won the mayoral race 509 to 266 against long-time incumbent Gerald J. McGlone Jr., said development was the issue on people’s minds as he knocked on doors this fall.

At four stories, residents thought that Eastside Flats was too tall for Malvern, which is a small town with only 3,000 residents and encompassing a square mile. People worried that additional development would change the character of their hometown.

“Most people were upset as I campaigned,” said Burton. “People expressed that concern.”

So Easttown Township residents, it’s UP TO YOU. Don’t let non-residents and others tell you what your community should be. If you want to preserve your “village” then you need to send plans like this right back to the drawing table. Development needs to be careful and inclusive, not selfish. Don’t let non-residents, politicians, and developers make your village decisions.   Learn from the mistakes of residents in many different municipalities and counties.

Intersection of Berwyn and Midland Aves (where the large old Oak trees are currently in front of DeLuca’s Barbershop). This rendering leads the viewer to believe that Berwyn Ave is very wide. Instead, this is a narrow intersection that sits directly across from the CVS/Veekoo parking lot, and is already a busy one. Cars not able to exit onto Lancaster via the light at Midland, or the stop sign at Woodside, will use the surrounding village streets such as Berwyn Ave, to get onto Lancaster.

Again, development should be inclusive and growth should make sense.  In my humble opinion, this plan is another one that doesn’t make sense and I am entitled to said opinion. Naysayers will point to this post and say again that I am anti-development.  I am not.  But what I don’t see around here that I have seen in other areas are plans that are complementary to the surrounding area. Does the Flat Iron Building in NYC look like it would fit here? Because that is what looking at some of  the renderings made me think of, right or wrong. And we can’t downplay the impact continued development has on traffic, other infrastructure, school districts, municipal services, etc.

The developers' rendering shows how Handel's ice cream would be incorporated into the town center proposed on Lancaster Avenue in Berwyn.

Philadelphia Inquirer: Luxury town center proposed around Berwyn’s beloved ice cream shop, Handel’s
by Erin McCarthy, Updated: September 4, 2019

….a four-story, 150,000-square-foot mixed-use development with Handel’s and one or two small retailers on the ground floor, luxury apartments above, and a public plaza in the center. The complex also would have a two-story, 228-spot parking garage. Della Porta declined to comment on how much they intend to spend on the project.

Over the course of two meetings this summer, developers presented their plans to the zoning board, asking it to allow the construction of a public plaza and one more story than the code permits. They will have a third meeting later this month. When the presentations are finished, Briggs said, the board will decide whether to recommend the project for consideration by the township planning commission, a process that would take months….Residents who oppose the project say the complex will increase traffic, put pressure on the police and fire departments, and increase enrollment in the Tredyffrin/Easttown School District. They’ve started a loosely organized group called Save Easttown to protest the plan, which developers have called Berwyn Square.

I am going to close with the words of the residents who are part of Save Easttown. I don’t know that I know any of them personally, but I feel for them.  This is too reminiscent of the crap which has destroyed Ardmore. Sorry not sorry for that opinion too.  A lot of us worked to literally save Ardmore from eminent domain. But how many years later what did we save exactly? It’s still a quagmire of crappy development plans, horrible traffic and no parking. And it keeps getting worse.

SAVING EASTTOWN WITH RESPONSIBLE ZONING 
Next Zoning Hearing Board Date is Tuesday September 17th – 7:15pm at the Township Building
EASTTOWN, PA
AUGUST 27, 2019 IN HISTORIC BERWYN

easttown+signYou may have heard of current plans to construct a mixed use project situated on what is now Handels Ice Cream and its adjacent buildings. The developer, Berwyn LLC, is requesting zoning variances in order to build above the current 42’ limit, meaning that the building will reach the 50’ + level. The project will consist of 122 apartments with commercial space, and will fill the entire block of Lancaster, Midland, Woodside, and Berwyn Aves. We are a group of concerned citizens of Easttown Township, who have come together to preserve and promote the historic residential neighborhoods of the village of Berwyn. We are opposed to the development of this project for a variety of reasons, which we’ve described below.

Neighborhood Impact:

We are opposing the development of this project, because of its size, its population density, the increased traffic it will create, the impact to our police and fire departments, the parking shortages on the adjacent village streets it will cause, and the inevitable increase in the student population within the T/E school district. We also believe that there is a safety issue related to the number of children walking to and from T/E middle and Conestoga HS, especially with sidewalks being incomplete.

To give an idea of the density — the number of residents who would be housed in the apartment complex would mimic the entire population of all of Midland and Woodside Avenues combined. When questioned by an Easttown resident at the August 5 zoning board meeting, on the need for a zoning variance and why a project of this size is necessary, the developers provided two main reasons: the toxic underground waste presents a ‘hardship’ that can only be partially remediated (meaning that they can’t dig down very far to build a parking garage, and thus need to extend the height of the complex), and that the scale of the project needs to be this large, simply because anything smaller would not be “feasible” for them.

A project of this magnitude is unlike anything ever undertaken in the village (and it’s only one of several currently being proposed to our zoning board). The Berwyn village streets were built to accommodate traffic and parking needs from 100 years ago, not for what will occur if this development is allowed to go through as planned. Unless we oppose this project now, the impact will be felt for years to come. Not only will we face congested streets and parking shortages for existing Easttown residents (think Friday and Saturday around the local restaurants), but we are also endangering our children who walk to T/E middle and Conestoga HS – on streets without sidewalks.

High level view of the development – you can see that this complex will occupy the entire block. Plus, there are only two entrance and exit points onto Lancaster – Midland and Woodside. And neither are adequate for the expected lines of vehicles entering and exiting the property, and accessing Lancaster Ave. Drivers will seek alternate routes through the village to get to and from the premises.

honey, it’s called survival

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SLATE: In the Name of Love
Elites embrace the “do what you love” mantra. But it devalues work and hurts workers.
By MIYA TOKUMITSU

“Do what you love. Love what you do.”

The command is framed and perched in a living room that can only be described as “well-curated.” A picture of this room appeared first on a popular design blog and has been pinned, tumbl’d, and liked thousands of times. Though it introduces exhortations to labor into a space of leisure, the “do what you love” living room is the place all those pinners and likers long to be.

There’s little doubt that “do what you love” (DWYL) is now the unofficial work mantra for our time. The problem with DWYL, however, is that it leads not to salvation but to the devaluation of actual work—and more importantly, the dehumanization of the vast majority of laborers.

Superficially, DWYL is an uplifting piece of advice, urging us to ponder what it is we most enjoy doing and then turn that activity into a wage-generating enterprise. But why should our pleasure be for profit? And who is the audience for this dictum?

Yes, this is an old article.  But it struck a chord with me. The author turned it into a book or vice versa. (Not really sure.)

A friend posted this on their Facebook page and it is an intriguing read. Even if I do not necessarily agree with a lot of commentary. I spent years doing what I did NOT love at that point any longer mainly because I was afraid to take a gamble on myself, and I had bills to pay.  Breast cancer freed me from that because I had to leave my old industry literally to reduce my stress or fear recurrence. (It was one of those times where your medical care team does an intervention, and like it or not, you have to or should listen.)

When the author of the article says things like the quote below it’s like she is mocking those of us who left the corporate hamster wheel.

“DWYL is a secret handshake of the privileged and a worldview that disguises its elitism as noble self-betterment. According to this way of thinking, labor is not something one does for compensation but is an act of love. If profit doesn’t happen to follow, presumably it is because the worker’s passion and determination were insufficient.”

Doing my own thing is not elitist, well, it’s survival. I am 55. Corporate America does NOT like to hire women over 50. Or even in their mid-40s.  We are too expensive when it comes to things like healthcare and we are old enough to mostly know our own minds.  Knowing your own mine is a threat.  It’s far easier for them to hire women half of our age who can still sport short skirts without looking too old to sport short skirts.  And if they have a choice between hiring a woman my age who doesn’t color her hair and who hasn’t had “work done” and one who has? Botox and hair coloring win every time.

Ageism is a real thing.  It was a very strange sensation realizing I was no longer one of the younger ones in the room.  And since I stopped coloring my hair, I look in the mirror and I see relatives who came before me.  I loved every one of them, but I am still not sure how I feel about it some days.

Some days I wonder should I have had “work done” even a little filler like a lot of women I know? And every time I have this conversation with myself, it ends the same way: I am who I am, I can’t pretend to be someone else.

On some days I am fine with my age and who I am.  Other days it’s like where did my 25 year old ass and legs go?

Yet, the reality is me at 55 is a heck of a lot happier than me in my 20s.

Being in your 20s is exhausting.  The games with dating and learning to be yourself.  The games with who were actually your friends, and the hurt of the ones who betray you and you should have let go of long before that.  Or being in your 20s and to have a boyfriend cheat on you and they don’t understand why you couldn’t just move past it and not walk? And neither do some of your friends?

The twenties and even your thirties was the whole additional journey of trying to find yourself as a woman and trying to learn how to be an adult.  Some days were better than others, remember? Remember the days you wanted to scream into an empty room?

Working in your 20s, or what I remember in the financial services industry (and friends who were in different industries had similar tales) meant learning to keep your back to the wall when some older male colleagues around and I even remember one temp job I had where my first day two women warned me not to get caught in the room where the copy machines were with one guy in particular.

Damn we all could have had our workplace #MeToo moments and a lot of us did to varying degrees. But we didn’t talk or tweet about it, we just survived.  Because we had to.

I had a lot of friends get married in their 20s.  In a lot of cases I should say the first time.  As I attended wedding after wedding sometimes I just didn’t get how you could go from being dependent upon your parents to being dependent upon a spouse without any chance to grow in between and learn who you were.

A lot of my friends were just on autopilot to marry and produce children.  We were partially all raised to be that way.  Maybe that sounds elitist, I don’t know. It is just the way it was.

I was a late bloomer so I did not marry until much later and I think the timing was right for me. I spent a lot of time feeling like I did not quite fit and didn’t quite know myself.  But it took years to even admit to myself that I liked spending time by myself.  I was at the end of an engagement where I had the epiphany that if I did end up just with myself I would be o.k.  That realization was very freeing and I think it was a key to opening me up to the woman I am today. Or who I might become.  Some days I still wonder am I there yet?

Career-wise I had a path that wasn’t necessarily the path I would have chosen initially but I liked it and it paid the bills.  Was it fulfilling? Nope. But it sure was eye-opening as to human nature.

Then came breast cancer.  I could no longer handle the stress, the hours, the mental gymnastics of cut throat and duplicitous people.  Being a woman in my old industry was exhausting on a good day, but after breast cancer surgery and treatment? I just couldn’t do it any longer.  And it had ceased being rewarding long ago.  And it’s an industry that still treats women like crap and always will.  And I would never be hard enough.

So breast cancer gave me the courage to look at things differently.  It was hard. It still can be hard.  People ask me why some days I do so much? The answer is I was in my old industry for so long, I forgot how to relax.  You were geared to getting so much done in one day. You had to.  You were subject to everyone else’s deadlines.

Doing more of what I love and being able to love what I do? It became about survival and starting to experience ageism.  And when ageism smacks you in the face, it’s a real bitch. So when people say do what you love (DWYL) is somehow elitist, well sometimes it is the path that opened for you. I wasn’t ready to be a greeter at Target or WalMart, sorry.

So I took a risk. I took a chance on complete change. It’s just as hard some days as putting up with crap as a tiny cog in the wheel of Corporate America, trust me.  Nothing is perfect, and those who pretend it is are doing themselves a disservice.

Let’s talk about other things in realm of ageism as a woman in the workforce.  I learned this in my 40s when I became a statistic in the layoffs done at Wachovia Securities before Wells Fargo came in.  Corporate jets were not expendable, but worker bees like me were.  Do you know how surreal it was having an HR folder full of accolades and customer testimonials as to how GOOD a job I did, and being fêted nationally by the company as a “volunteer of the year” for my volunteerism in my community to being a corporate pre-merger layoff statistic?  Seriously, the day I got my package they gave me a chart showing where everyone was getting cut in my region and whether they were male or female.

After being forced as part of a giant corporate separation package to take a time out (in case they decide to UN-lay me off and bring me back), I came back out into the workforce late 2007 to early 2008.  A completely crap economy and here I was a woman in my 40s. Why hire me when they could hire someone so much younger? And then there was the interview where the interviewer literally asked why I did not remember him.  Apparently I had turned him down for a job like 15 plus years prior and he never got over it? (Yeah THAT wasn’t too weird, was it?) And then there were the job interviews that were like marathons. Literally hours in one day like a perverse corporate endurance test.

And in this brave new world of interviewing a lot of the interviews were not even face to face any longer. And even if you sent a thank you note for an interview like you are supposed to, sometimes they just didn’t bother to ever reply. Most of the time they never bothered to acknowledge you even submitted a resume.

When I finally did land a job which on paper sounded amazing, among other things I was working for someone who did not offer even access to healthcare benefits, proper vacation time, or a retirement plan.  But I needed to work, I had to support myself.  So I took it.

This is the job I should have left three months in, but instead I stayed about four years. I left post breast cancer.  I was exhausted.  Because I worked for a company that offered no benefits, sick days, vacation days and never had a policy on sick or vacation days per say, I pretty much had my breast cancer surgery and came right back to work.  I had to work through my post surgical treatment.  I felt like I was in a white collar sweat shop and damn didn’t my ancestors work themselves to the bone a immigrants to the US so future generations like myself didn’t have to?

But I did not have the courage or faith in myself to leave.  Until my husband looked at me one day after the doctors had done their intervention and told me I had to get out of the current job that the stress would kill me, and said “quit.”

I looked at him like I misheard him. So he repeated himself and said “Quit. It’s not worth the stress and something else will come along.”

So I did what I never had done, I quit. And a weight lifted off of my shoulders. But this was the job that left me with Corporate America PTSD.  Not only didn’t I want to get back on that hamster wheel, I couldn’t.

So I changed everything. I had to. Has it been easy doing only for myself? No not every day because some days I feel like I have adult onset A.D.D. and for love or money, I can’t concentrate. But it’s nice to feel like me again, or to maybe even finally know who I actually am.

Growing up the choices were career girl or get married.  Even after the day of bra burnings, female empowerment, and women’s lib that was still pretty much it.  Today, in a lot of ways, it still is. And I am so sure a lot of women will read this and be enraged. Stuff it ladies, I am not breaking new ground here.

One thing I agree with the magazine article writer on is if you kind of want to “have it all,”  you might need to have lots and lots of lovely money to begin with. If you are just a regular person, that mantra is a little harder to achieve.  But I do believe that you should try to love what you do, or at least like it.  Otherwise it’s not worth it and weighs you down.

Women wear many hats in life.  We walk many tightropes. But somehow, we get there, don’t we? It’s called survival.

Thanks for stopping by.

 

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this could happen to anyone, but it happened to beth

This is a community member. This could be anyone, and it’s legitimate. This is NOT someone who is faking anything and with all she has faced so bravely I don’t know how she does it.

She’s a real woman and a mom and she can’t catch a break.

Brain tumors, other potential cancer-like growths, and Mitochondrial Disease. (Mitochondrial Disease examples are MS, Parkinsons, and Lou Gehrigs Disease (ALS).)

But for the Grace of God Go any of us. If you can help, every little bit helps. Even just sharing this helps.

Please help me pay this forward. This is a generous community and Beth needs our help.

Thank you

From her Go Fund Me months ago:

*updated*  Beth has always worked two jobs – however – in early December 2018 one of the attorneys at the lawfirm she worked at told her “if you’re having seizures I can’t have you here”… two weeks later she was let go – the Friday before Christmas.  She was not told why.  She was told only that she had 5 minutes to gather her things and leave and and never come back.   She rarely ever took a sick day even with the diagnosis of a brain tumor and lesion, which causes her to have severe vertigo and balance issues, seizures, headaches and fatigue…. 

In 2012 she even donated one of her kidneys to someone who needed it!  To hear her say it, “it was the right thing to do.  And, I had an extra one anyway.”   She’s always one to make people laugh…..She has been battling migraines since age six and was diagnosed with epilepsy a few years ago.  Now she is facing a recent diagnosis of a CORTICAL DYSPLASIA LESION and a LOW GRADE GLIOMA (brain tumor).  Which was actually discovered in 2014 on an MRI taken when she had a stroke.  However it was not disclosed to her until  June 2018 when she began having serious issues.  Someone dropped the ball big time!

Help Beth McNulty Battle Mitochondrial Disease

From her Go Fund Me this August:

AUGUST UPDATE – Beth’s is now being treated by a Neurologist at Einstein for Mitochondrial Disease. Mitochondrial Disease examples are MS, Parkinsons, and Lou Gehrigs Disease (ALS). She has an illness you cannot see and if she had been treated correctly years ago may have been able to avoid this stage. THERE IS NO CURE. THERE IS NO MAGIC MEDICATION. Mito is controlled through diet and nutrition and overall management. The hardest part for her and for us is the effects of the cognitive decline. She can’t do many of the things she used to even just around the house and its devastating to see and devastating to her.

At this point she has been using a cane to walk since November. She has dementia like symptoms more often but she still has more of a “good day” than not so that is what we hang onto. The right side of her body is weak and her hand tremors which is also starting to happen in her right leg. She cannot hold a cup, and her right hand remains closed and is painful to open so we bought a small toy football for her to hold to keep it open.

She is incredibly effected by sound – too many “noise sources” are very confusing for her and can be overwhelming and even physically painful – she says it makes her ears burn – which also triggers seizures (before a seizure she usually touches her ears and face and that’s how I know she’s about to have an issue). She also gets very confused at these tmes and often has trouble finding her words or remember the conversation she is in. I think this may be part of why she stays in alot.

Her body cannot produce the energy it needs as fast as it is being used. Some days she cannot even move to reach for something because her body just wont cooperate and she is exhausted but when she CAN do something even if it is for a short time she does.

She cannot eat many solid foods at this point because she cannot digest them well (Gastroparesis) and chewing physically makes her Jaw tired.

We focus on key nutrients like Magnesium, Vitamin D, Iodine and B to keep her energy levels up. Her medications are on a schedule – Thyroid, Seizure, Migraine, and the foods we make sure she has every day are Avocado, Mango, Banana, Chicken and FlaxSeed.

In June she had and EEG and ENG, in July she had another w/wo contrast so her Nuero can compare with all the other scans dating back to 2014 when they discovered the tumor and lesion (but forgot to tell her about) but ALSO discover her Gastroparesis, and Thyroid Disease – 3 effected Organ systems = Mitochondrial Disease) – but 5 years later here we are…

The ENG was a very painful test of electrical conduction done in two parts – the first was topical electrode shocking her muscles and the second was long needles that shocked her muscles once they were inserted – I had to leave the room – it was like watching her be tortured for two hours.

This disease is robbing her and us. It’s painful for her to have and painful for us to watch her go through knowing nothing can be done. Alot of people seem to be google doctors which is very frustrating – we know what we are dealing with because WE are dealing with it although we do appreciate the well intended suggestions of trying this or that or maybe its “just…” we finally have a have a very educated team of medical professionals that are experts in their field.

Beth thought she had unemployment funds until December and in May was tricked into signing a release not to sue her former employer for an ADA claim in exchange for them not to contest it. and her last payment was in June. She has applied for disability but in the meantime we could really use some healp.

Help spread the word!

bye summer

Yes, this is it. The last official days of summer. Neighbors hanging out. Country music on the boom box. The sounds of happy kids and adults laughing and enjoying each other’s company.

Camaraderie.

Open space.

This is why we live here. This is what we need to protect.